Several years ago, I underwent
reconstructive facial surgery after having a very rare form of cancer. The excision of the cancer caused a large
portion of my forehead tissue to be removed down to skull-bone. Over the course of a year, I had four major facial
reconstructive surgeries, which included a skin graft, saline implants that
required ongoing injections of fluid to expand my forehead skin tissue, and
extensive surgery to reconfigure blood veins and create a new
hairline/forehead. With each surgery, I
shaved my hair and wore scarves and hats to hide all the reconstruction wounds
that were covering my head. I felt very
self-conscious and different than other “normal” people around me. My surgeries left me in a great deal of pain
– horrendous headaches and pressure. I
would get dizzy from changes in air pressure or from tilting my head down. I wouldn’t say that other’s oppressed me or
judged me, because they understood by my visible appearance that I must have
cancer. Instead, I received much
sympathy, kindness, and accommodation because of it.
I realize that other people with
different sicknesses and disabilities are not as kindly accepted or equitably
treated as I was. I watched a movie this
past week that really impacted me in regards to biases, prejudice and
oppression due to disability. This movie
was based on the real story of Brad Cohen, who was born with Tourette’s
Syndrome, a neurological disorder that causes a person to have uncontrolled
ticks, body movements, and/or vocal noises.
Brad was discriminated against all his life by people who did not
understand his disease. His father and
most of Brad’s teachers couldn’t accept Brad, and thought he purposefully made
those noises and actions to be funny or to misbehave. It wasn’t until a principal acknowledged
Brad’s disability and made accommodations for Brad, that he felt successful and
had hope to be able to overcome the challenge of Tourette’s Syndrome. Through the inspiration of his mother and the
acceptance he felt from an inspired principal, Brad battled prejudice and oppression,
attending college and successfully earn an elementary education teaching
certificate. However, many principals
would not give Mr. Cohen a chance to teach, fearing that his Tourette’s would
distract the children’s learning. After
interviewing with over 20 schools, Mr. Cohen finally found a school willing to
take a chance on him. He proved that
educating children about disabilities increased acceptance, and that everyone
deserves a chance to overcome challenges.
Mr. Cohen later earned the Georgia teacher of the Year award and became
a motivational speaker.
I feel deeply inspired by Brad
Cohen and his motivation to not let his disability define who he is or limit
his potential. He overcame great
challenge to be a successful teacher and to inspire countless others. Mr. Cohen proves that there is limitless
potential of each person when they are given fair access, equitable treatment,
and a chance!
Collett,
ReplyDeleteThank you for sharing your own story as well as the inspiring story of Brad Cohen. I am so sorry that you had to deal with all that you did as a result of having cancer but I am so glad to hear that you overcame it. I am glad that people responded kindly to you but at the same time I wonder how you felt about the attention you received because of your appearance and what it meant to others.
I think as human beings, what we don't know makes us afraid and this manifests itself through our behavior. I think many of us just don't know how to respond to someone with a disability. The easiest thing to do is avoid them as it seemed to be in the case of Brad Cohen. I think we all just need to make ourselves more aware of the different abilities we all have and make a commitment to be more accepting and responsive of all.
Hi Collett,
ReplyDeleteYou are such an inspiring person and I thank you for your strength. It is true that misunderstanding of a disability or sickness can lead to people being treated poorly. As educators we can be that one person Brad Cohen was speaking about who inspires and believes in the children so they can go on to succeed.